11
15

Sickle Cell Disease Comprehensive Care Act

10/7/2025, 3:59 PM

Summary of Bill HR 5178

H.R. 5178, introduced in the 119th Congress on September 8, 2025, aims to amend title XIX of the Social Security Act to empower State Medicaid programs to offer comprehensive, coordinated care through a health home specifically for individuals diagnosed with sickle cell disease.

Congressional Summary of HR 5178

Sickle Cell Disease Comprehensive Care Act

This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.

The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.

Current Status of Bill HR 5178

Bill HR 5178 is currently in the status of Bill Introduced since September 8, 2025. Bill HR 5178 was introduced during Congress 119 and was introduced to the House on September 8, 2025.  Bill HR 5178's most recent activity was Referred to the House Committee on Energy and Commerce. as of September 8, 2025

Bipartisan Support of Bill HR 5178

Total Number of Sponsors
1
Democrat Sponsors
0
Republican Sponsors
1
Unaffiliated Sponsors
0
Total Number of Cosponsors
62
Democrat Cosponsors
56
Republican Cosponsors
6
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HR 5178

Primary Policy Focus

Health

Alternate Title(s) of Bill HR 5178

To amend title XIX of the Social Security Act to enable State Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with sickle cell disease.
To amend title XIX of the Social Security Act to enable State Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with sickle cell disease.

Comments