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Sickle Cell Disease Comprehensive Care Act

3/21/2025, 5:42 PM

Summary of Bill S 721

Bill 119 s 721, also known as the Sickle Cell Disease Improvement Act, aims to make improvements to outpatient clinical care for individuals with sickle cell disease. The bill proposes to amend title XIX of the Social Security Act in order to establish a demonstration project that will focus on enhancing care for those with sickle cell disease.

The main goal of this legislation is to address the specific needs of individuals with sickle cell disease and improve their access to quality outpatient clinical care. By establishing a demonstration project, lawmakers hope to test new approaches and strategies for providing better care to this vulnerable population.

If passed, this bill would represent a significant step forward in addressing the healthcare disparities faced by individuals with sickle cell disease. By focusing on outpatient clinical care, the legislation aims to improve the overall health outcomes and quality of life for those living with this chronic condition. Overall, the Sickle Cell Disease Improvement Act is a promising piece of legislation that has the potential to make a real difference in the lives of individuals with sickle cell disease. It demonstrates a commitment to addressing the unique healthcare needs of this population and working towards better outcomes for those affected by this condition.

Congressional Summary of S 721

Sickle Cell Disease Comprehensive Care Act

This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.

The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.

Current Status of Bill S 721

Bill S 721 is currently in the status of Bill Introduced since February 25, 2025. Bill S 721 was introduced during Congress 119 and was introduced to the Senate on February 25, 2025.  Bill S 721's most recent activity was Read twice and referred to the Committee on Finance. as of February 25, 2025

Bipartisan Support of Bill S 721

Total Number of Sponsors
3
Democrat Sponsors
3
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
1
Democrat Cosponsors
0
Republican Cosponsors
1
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill S 721

Primary Policy Focus

Health

Alternate Title(s) of Bill S 721

A bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.
A bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.

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