0
To establish a national plan to coordinate research on epilepsy, and for other purposes.
3/7/2025, 9:07 AM
Summary of Bill HR 1189
The bill outlines the establishment of a National Epilepsy Coordination and Research Program, which will be responsible for developing and implementing a strategic plan for epilepsy research. This program will bring together experts from various fields, including healthcare providers, researchers, and patient advocates, to collaborate on advancing our understanding of epilepsy and improving treatment options.
Additionally, the bill calls for increased funding for epilepsy research, with a focus on identifying the underlying causes of epilepsy, developing new therapies, and improving access to care for individuals living with epilepsy. The goal of this legislation is to ultimately improve the quality of life for those affected by epilepsy and to work towards finding a cure for this debilitating condition. Overall, Bill 119 hr 1189 represents a bipartisan effort to address the challenges faced by individuals living with epilepsy and to support research efforts that will lead to better outcomes for those affected by this condition.
Congressional Summary of HR 1189
National Plan for Epilepsy Act
This bill requires the Department of Health and Human Services (HHS) to establish a national plan, form an advisory council, and take other actions to address epilepsy. The requirements sunset on December 31, 2035.
Specifically, the bill requires HHS to carry out a National Plan for Epilepsy to prevent, diagnose, treat, and cure epilepsy. In carrying out the plan, HHS must implement activities such as coordinating research and services across all federal agencies and soliciting public comments.
Also, HHS must establish an Advisory Council on Epilepsy Research, Care, and Services. The advisory council must report to HHS and Congress every two years with an evaluation of federally funded efforts.
Additionally, HHS must annually report to Congress with recommended actions based on its assessments of the nation’s progress on epilepsy.





