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National Plan to End Parkinson’s Act
12/15/2023, 4:06 PM
Summary of Bill S 1064
The bill outlines several key components of the national plan, including the creation of a Parkinson's Disease Interagency Coordinating Committee to coordinate federal efforts to combat the disease. This committee would be responsible for developing and updating a strategic plan for research, treatment, and prevention of Parkinson's disease.
Additionally, the bill calls for increased funding for Parkinson's disease research, as well as the establishment of a national registry to track the prevalence and impact of the disease. The bill also emphasizes the importance of improving access to care and support services for individuals living with Parkinson's disease. Overall, the National Plan to End Parkinson's Act aims to bring together government agencies, researchers, healthcare providers, and advocacy organizations to work towards a common goal of ending Parkinson's disease. By prioritizing research, coordination, and support services, this bill seeks to improve the lives of those affected by Parkinson's and ultimately find a cure for this debilitating condition.
Congressional Summary of S 1064
National Plan to End Parkinson's Act
This bill requires the Department of Health and Human Services (HHS) to carry out a project to prevent and cure Parkinson's disease (a progressive brain disorder that causes unintended or uncontrollable movements) and related conditions.
Among other components of the project, HHS must (1) implement and periodically update a national plan to coordinate and guide efforts to prevent, slow the progression of, and cure the disease; and (2) improve diagnosis, treatment, and care of those with the disease. HHS must also annually assess the preparations for and response to the increased burden of Parkinson's disease.
In addition, the bill establishes a council, comprised of federal and nonfederal stakeholders, to advise HHS on and make recommendations concerning the prevention and treatment of Parkinson's disease.
The provisions of the bill terminate at the end of calendar year 2035.





