Summary of Bill HRES 253
Bill 119 HRES 253, also known as the "Prader-Willi Syndrome Awareness Day" bill, aims to designate May 15, 2025, as a day to raise awareness of and promote research on Prader-Willi Syndrome. This rare genetic disorder affects approximately 1 in 15,000 people and is characterized by symptoms such as insatiable hunger, obesity, intellectual disabilities, and behavioral issues.
The bill emphasizes the importance of increasing awareness about Prader-Willi Syndrome in order to improve early diagnosis and access to appropriate treatments. By designating May 15th as "Prader-Willi Syndrome Awareness Day," the hope is to educate the public, healthcare professionals, and policymakers about the challenges faced by individuals with this disorder and to encourage further research into potential treatments and interventions.
Overall, Bill 119 HRES 253 seeks to bring attention to Prader-Willi Syndrome and advocate for increased support for individuals and families affected by this condition. By raising awareness and promoting research, the goal is to improve the quality of life for those living with Prader-Willi Syndrome and ultimately find a cure for this complex disorder.