Summary of Bill HRES 181
Bill 118 HRES 181, also known as the "Rare Disease Day" bill, is a piece of legislation that expresses support for designating February 28, 2023, as "Rare Disease Day." The bill aims to raise awareness about rare diseases and the challenges faced by individuals living with these conditions.
Rare diseases are defined as conditions that affect a small percentage of the population, often making it difficult for patients to receive proper diagnosis and treatment. By designating a specific day to recognize rare diseases, the bill seeks to bring attention to the need for increased research, funding, and support for those affected by these conditions.
The bill emphasizes the importance of collaboration between patients, caregivers, healthcare providers, researchers, and policymakers in addressing the unique needs of individuals with rare diseases. It also highlights the significant impact that rare diseases have on individuals, families, and communities, and the importance of raising awareness and advocating for improved access to care and resources.
Overall, Bill 118 HRES 181 aims to promote understanding and support for individuals living with rare diseases and to encourage efforts to improve their quality of life.
Congressional Summary of HRES 181
This resolution expresses support for the designation of Rare Disease Day.