Bill 117 HRES 952, also known as the "Rare Disease Day" resolution, is a piece of legislation that expresses support for the designation of February 28, 2022, as "Rare Disease Day." The purpose of this resolution is to raise awareness about rare diseases and the challenges faced by individuals living with these conditions.
The resolution acknowledges that rare diseases affect millions of Americans and their families, often leading to significant medical, emotional, and financial burdens. It also recognizes the importance of research and innovation in finding treatments and cures for rare diseases.
By designating February 28, 2022, as "Rare Disease Day," the resolution aims to bring attention to the need for increased funding for research, improved access to healthcare services, and greater support for individuals and families affected by rare diseases. It also encourages the public to learn more about rare diseases and to support efforts to improve the lives of those living with these conditions.
Overall, Bill 117 HRES 952 is a bipartisan effort to raise awareness about rare diseases and to advocate for policies that will benefit individuals and families affected by these conditions.