Expressing support for the designation of "Batten Disease Awareness Day" on June 9.

Bill 118 HRES 485, also known as the "Batten Disease Awareness Day" bill, is a piece of legislation that expresses support for the designation of June 9 as Batten Disease Awareness Day. Batten Disease is a rare, fatal genetic disorder that primarily affects children, causing progressive neurological deterioration and eventually leading to death.

The bill aims to raise awareness about Batten Disease and the impact it has on individuals and families. By designating June 9 as Batten Disease Awareness Day, the bill seeks to educate the public about the disease, promote research efforts to find a cure, and provide support to those affected by Batten Disease.

The legislation is non-partisan and has garnered bipartisan support in Congress. It highlights the importance of raising awareness about rare diseases like Batten Disease and the need for continued research and support for individuals and families affected by these conditions. Overall, Bill 118 HRES 485 is a meaningful piece of legislation that aims to bring attention to Batten Disease and support those impacted by this devastating condition.