0
0
0
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
2/5/2024, 2:30 PM
Summary of Bill HRES 419
Bill 118 HRES 419, also known as the Ehlers-Danlos Syndrome Awareness Month Resolution, is a piece of legislation that aims to raise awareness about Ehlers-Danlos Syndrome (EDS) by designating the month of May as EDS Awareness Month. EDS is a genetic disorder that affects the body's connective tissues, leading to symptoms such as joint hypermobility, skin fragility, and chronic pain.
The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.
Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.
Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
Congressional Summary of HRES 419
This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.
Read the Full Bill
Current Status of Bill HRES 419
Bill HRES 419 is currently in the status of Bill Introduced since May 17, 2023. Bill HRES 419 was introduced during Congress 118 and was introduced to the House on May 17, 2023. Bill HRES 419's most recent activity was Referred to the Subcommittee on Health. as of May 19, 2023
Bipartisan Support of Bill HRES 419
Total Number of Sponsors
1Democrat Sponsors
1Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
0Democrat Cosponsors
0Republican Cosponsors
0Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill HRES 419
Primary Policy Focus
HealthPotential Impact Areas
- Commemorative events and holidays
- Congressional tributes
- Health promotion and preventive care
- Hereditary and development disorders
- Medical research
Alternate Title(s) of Bill HRES 419
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Comments
Sponsors and Cosponsors of HRES 419
Latest Bills
ACCESS Rural America Act
Bill S 5003July 31, 2026
License to Drill Act
Bill HR 7831July 31, 2026
A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Department of Health and Human Services relating to "Restoring Flexibility in the Child Care and Development Fund (CCDF)".
Bill SJRES 199July 31, 2026
AGOA Extension Act
Bill HR 6500July 31, 2026
Emergency Conservation Program Improvement Act of 2025
Bill S 629July 31, 2026
Expedited Access to Biosimilars Act
Bill HR 9661July 31, 2026
Expedited Access to Biosimilars Act
Bill S 1414July 31, 2026
Protecting Innocent Taxpayers from Endless Assessments Act
Bill S 4964July 31, 2026
A bill to designate the outdoor amphitheater at the Blue Ridge Music Center in Galax, Virginia, as the "Rick Boucher Amphitheater".
Bill S 815July 31, 2026
SEED Act
Bill HR 5334July 31, 2026
