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Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
2/5/2024, 2:30 PM
Summary of Bill HRES 419
Bill 118 HRES 419, also known as the Ehlers-Danlos Syndrome Awareness Month Resolution, is a piece of legislation that aims to raise awareness about Ehlers-Danlos Syndrome (EDS) by designating the month of May as EDS Awareness Month. EDS is a genetic disorder that affects the body's connective tissues, leading to symptoms such as joint hypermobility, skin fragility, and chronic pain.
The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.
Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.
Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
Congressional Summary of HRES 419
This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.
Read the Full Bill
Current Status of Bill HRES 419
Bill HRES 419 is currently in the status of Bill Introduced since May 17, 2023. Bill HRES 419 was introduced during Congress 118 and was introduced to the House on May 17, 2023. Bill HRES 419's most recent activity was Referred to the Subcommittee on Health. as of May 19, 2023
Bipartisan Support of Bill HRES 419
Total Number of Sponsors
1Democrat Sponsors
1Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
0Democrat Cosponsors
0Republican Cosponsors
0Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill HRES 419
Primary Policy Focus
HealthPotential Impact Areas
- Commemorative events and holidays
- Congressional tributes
- Health promotion and preventive care
- Hereditary and development disorders
- Medical research
Alternate Title(s) of Bill HRES 419
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Comments
Sponsors and Cosponsors of HRES 419
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