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Expressing support for the designation of May 15, 2023, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.
2/5/2024, 2:30 PM
Summary of Bill HRES 404
Bill 118 HRES 404, also known as the "Prader-Willi Syndrome Awareness Day" bill, aims to designate May 15, 2023, as a day to raise awareness of and promote research on Prader-Willi Syndrome. This rare genetic disorder affects approximately 1 in 15,000 people and is characterized by a range of physical, cognitive, and behavioral challenges.
The bill emphasizes the importance of increasing public understanding of Prader-Willi Syndrome and supporting efforts to find effective treatments and interventions for those living with the disorder. By designating May 15th as "Prader-Willi Syndrome Awareness Day," the hope is to bring attention to the needs of individuals with this condition and their families, as well as to encourage further research and advocacy efforts.
Overall, Bill 118 HRES 404 seeks to highlight the impact of Prader-Willi Syndrome on individuals and families, and to promote greater awareness and support for those affected by this complex disorder.
The bill emphasizes the importance of increasing public understanding of Prader-Willi Syndrome and supporting efforts to find effective treatments and interventions for those living with the disorder. By designating May 15th as "Prader-Willi Syndrome Awareness Day," the hope is to bring attention to the needs of individuals with this condition and their families, as well as to encourage further research and advocacy efforts.
Overall, Bill 118 HRES 404 seeks to highlight the impact of Prader-Willi Syndrome on individuals and families, and to promote greater awareness and support for those affected by this complex disorder.
Current Status of Bill HRES 404
Bill HRES 404 is currently in the status of Bill Introduced since May 15, 2023. Bill HRES 404 was introduced during Congress 118 and was introduced to the House on May 15, 2023. Bill HRES 404's most recent activity was Referred to the Subcommittee on Health. as of May 19, 2023
Bipartisan Support of Bill HRES 404
Total Number of Sponsors
1Democrat Sponsors
1Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
0Democrat Cosponsors
0Republican Cosponsors
0Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill HRES 404
Primary Policy Focus
HealthComments
Sponsors and Cosponsors of HRES 404
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