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Expressing support for the designation of February 28, 2023, as "Rare Disease Day".
3/13/2024, 5:01 PM
Summary of Bill HRES 181
Bill 118 HRES 181, also known as the "Rare Disease Day" bill, is a piece of legislation that expresses support for designating February 28, 2023, as "Rare Disease Day." The bill aims to raise awareness about rare diseases and the challenges faced by individuals living with these conditions.
Rare diseases are defined as conditions that affect a small percentage of the population, often making it difficult for patients to receive proper diagnosis and treatment. By designating a specific day to recognize rare diseases, the bill seeks to bring attention to the need for increased research, funding, and support for those affected by these conditions.
The bill emphasizes the importance of collaboration between patients, caregivers, healthcare providers, researchers, and policymakers in addressing the unique needs of individuals with rare diseases. It also highlights the significant impact that rare diseases have on individuals, families, and communities, and the importance of raising awareness and advocating for improved access to care and resources. Overall, Bill 118 HRES 181 aims to promote understanding and support for individuals living with rare diseases and to encourage efforts to improve their quality of life.
Rare diseases are defined as conditions that affect a small percentage of the population, often making it difficult for patients to receive proper diagnosis and treatment. By designating a specific day to recognize rare diseases, the bill seeks to bring attention to the need for increased research, funding, and support for those affected by these conditions.
The bill emphasizes the importance of collaboration between patients, caregivers, healthcare providers, researchers, and policymakers in addressing the unique needs of individuals with rare diseases. It also highlights the significant impact that rare diseases have on individuals, families, and communities, and the importance of raising awareness and advocating for improved access to care and resources. Overall, Bill 118 HRES 181 aims to promote understanding and support for individuals living with rare diseases and to encourage efforts to improve their quality of life.
Congressional Summary of HRES 181
This resolution expresses support for the designation of Rare Disease Day.
Read the Full Bill
Current Status of Bill HRES 181
Bill HRES 181 is currently in the status of Bill Introduced since February 28, 2023. Bill HRES 181 was introduced during Congress 118 and was introduced to the House on February 28, 2023. Bill HRES 181's most recent activity was Referred to the Subcommittee on Health. as of March 10, 2023
Bipartisan Support of Bill HRES 181
Total Number of Sponsors
1Democrat Sponsors
1Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
38Democrat Cosponsors
32Republican Cosponsors
6Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill HRES 181
Primary Policy Focus
HealthPotential Impact Areas
- Commemorative events and holidays
- Health promotion and preventive care
- Hereditary and development disorders
- Medical research
- Medical tests and diagnostic methods
- World health
Alternate Title(s) of Bill HRES 181
Expressing support for the designation of February 28, 2023, as "Rare Disease Day".
Expressing support for the designation of February 28, 2023, as "Rare Disease Day".
Comments
Sponsors and Cosponsors of HRES 181
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