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Expressing support for the designation of February 28, 2023, as "Rare Disease Day".

3/13/2024, 5:01 PM

Summary of Bill HRES 181

Bill 118 HRES 181, also known as the "Rare Disease Day" bill, is a piece of legislation that expresses support for designating February 28, 2023, as "Rare Disease Day." The bill aims to raise awareness about rare diseases and the challenges faced by individuals living with these conditions.

Rare diseases are defined as conditions that affect a small percentage of the population, often making it difficult for patients to receive proper diagnosis and treatment. By designating a specific day to recognize rare diseases, the bill seeks to bring attention to the need for increased research, funding, and support for those affected by these conditions.

The bill emphasizes the importance of collaboration between patients, caregivers, healthcare providers, researchers, and policymakers in addressing the unique needs of individuals with rare diseases. It also highlights the significant impact that rare diseases have on individuals, families, and communities, and the importance of raising awareness and advocating for improved access to care and resources. Overall, Bill 118 HRES 181 aims to promote understanding and support for individuals living with rare diseases and to encourage efforts to improve their quality of life.

Congressional Summary of HRES 181

This resolution expresses support for the designation of Rare Disease Day.

Current Status of Bill HRES 181

Bill HRES 181 is currently in the status of Bill Introduced since February 28, 2023. Bill HRES 181 was introduced during Congress 118 and was introduced to the House on February 28, 2023.  Bill HRES 181's most recent activity was Referred to the Subcommittee on Health. as of March 10, 2023

Bipartisan Support of Bill HRES 181

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
38
Democrat Cosponsors
32
Republican Cosponsors
6
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HRES 181

Primary Policy Focus

Health

Potential Impact Areas

- Commemorative events and holidays
- Health promotion and preventive care
- Hereditary and development disorders
- Medical research
- Medical tests and diagnostic methods
- World health

Alternate Title(s) of Bill HRES 181

Expressing support for the designation of February 28, 2023, as "Rare Disease Day".
Expressing support for the designation of February 28, 2023, as "Rare Disease Day".

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