Recognizing the significance of Charcot-Marie-Tooth disease and the need for robust funding of the National Institute of Neurological Disorders and Stroke at the National Institutes of Health.

Bill 118 HRES 1039, also known as the Charcot-Marie-Tooth Disease Awareness and Funding Act, is a piece of legislation that aims to recognize the importance of Charcot-Marie-Tooth disease (CMT) and the need for increased funding for research on this rare neurological disorder.

Charcot-Marie-Tooth disease is a genetic disorder that affects the peripheral nerves, leading to muscle weakness and loss of sensation in the extremities. It is estimated that CMT affects approximately 1 in 2,500 people worldwide, making it one of the most common inherited neurological disorders.

The bill highlights the importance of funding for research on CMT, as well as the need for increased awareness and support for individuals living with the disease. It specifically calls for robust funding of the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health (NIH), which plays a key role in funding research on neurological disorders, including CMT. By recognizing the significance of Charcot-Marie-Tooth disease and advocating for increased funding for research, this bill aims to improve the quality of life for individuals living with CMT and ultimately find a cure for this debilitating disorder.