Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as "Rare Disease Day".

12/30/2022, 4:33 AM

Summary of Bill HRES 948

Bill 117 hres 948, also known as the "Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as 'Rare Disease Day'", aims to address the unique struggles that patients of color face when dealing with rare diseases.

The bill acknowledges that individuals from minority communities often face greater challenges in accessing proper healthcare and treatment for rare diseases, leading to a disproportionate burden on these communities. It emphasizes the importance of identifying and promoting evidence-based solutions to alleviate these disparities and ensure that all individuals, regardless of race or ethnicity, have equal access to quality care for rare diseases.

Additionally, the bill supports the recognition of the last day in February as "Rare Disease Day", a global observance that raises awareness about rare diseases and the impact they have on individuals and families. By officially recognizing this day, the bill aims to bring attention to the struggles faced by those with rare diseases, particularly patients of color, and promote efforts to improve healthcare access and outcomes for all individuals affected by these conditions. Overall, Bill 117 hres 948 seeks to address the disparities faced by patients of color with rare diseases and promote solutions that will help alleviate the burden on these communities. By supporting the recognition of Rare Disease Day and advocating for evidence-based approaches to healthcare, the bill aims to improve outcomes and access to care for all individuals affected by rare diseases.

Congressional Summary of HRES 948

This resolution supports the designation of Rare Disease Day and recognizes the importance of decreasing rare diseases, especially among people of color.

Read the Full Bill

Formatted Text PDF Formatted XML

Current Status of Bill HRES 948

Bill HRES 948 is currently in the status of Bill Introduced since February 28, 2022. Bill HRES 948 was introduced during Congress 117 and was introduced to the House on February 28, 2022. Bill HRES 948's most recent activity was Referred to the Subcommittee on Health. as of February 28, 2022

Bipartisan Support of Bill HRES 948

Total Number of Sponsors

Democrat Sponsors

Republican Sponsors

Unaffiliated Sponsors

Total Number of Cosponsors

Democrat Cosponsors

Republican Cosponsors

Unaffiliated Cosponsors

Policy Area and Potential Impact of Bill HRES 948

Primary Policy Focus

Health

Alternate Title(s) of Bill HRES 948

Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as "Rare Disease Day".