Supporting the designation of the third week of November, November 14 to November 20, 2021, as "TED Awareness Week".

Bill 117 HRES 809, also known as the "TED Awareness Week" bill, aims to designate the third week of November, specifically November 14 to November 20, 2021, as "TED Awareness Week." The purpose of this designation is to raise awareness about the condition known as "Tuberous Sclerosis Complex" (TSC) and to educate the public about the impact it has on individuals and families.

TSC is a rare genetic disorder that causes non-cancerous tumors to form in various organs of the body, including the brain, kidneys, heart, lungs, skin, and eyes. These tumors can lead to a range of health issues, including seizures, developmental delays, behavioral problems, and kidney disease. TSC affects approximately 1 in 6,000 newborns, making it a significant health concern for many individuals and families.

By designating a specific week to raise awareness about TSC, this bill aims to promote early detection, diagnosis, and treatment of the condition. It also seeks to support research efforts to better understand TSC and develop more effective treatments for those affected by it. Overall, the "TED Awareness Week" bill is a bipartisan effort to bring attention to a rare but impactful genetic disorder and to support those individuals and families who are affected by it. By educating the public and promoting research, this bill aims to improve the quality of life for individuals living with TSC and to ultimately find a cure for this challenging condition.