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American Genetic Privacy Act of 2021

12/31/2022, 9:00 AM

Summary of Bill HR 5154

Bill 117 HR 5154, also known as the American Genetic Privacy Act of 2021, is a piece of legislation currently being considered by the US Congress. The main purpose of this bill is to protect the genetic privacy of individuals in the United States.

The American Genetic Privacy Act of 2021 aims to regulate the collection, use, and disclosure of genetic information by various entities, including employers, health insurers, and genetic testing companies. The bill seeks to ensure that individuals have control over their genetic information and that it is not used against them in discriminatory ways.

Some key provisions of the bill include requiring informed consent for the collection and use of genetic information, prohibiting genetic discrimination in employment and health insurance, and establishing penalties for violations of the law. The bill also includes provisions for the secure storage and transmission of genetic information to protect against data breaches and unauthorized access. Overall, the American Genetic Privacy Act of 2021 is designed to safeguard the privacy and rights of individuals when it comes to their genetic information. It seeks to strike a balance between promoting medical research and innovation while also protecting individuals from potential harm and discrimination.

Congressional Summary of HR 5154

American Genetic Privacy Act of 2021

This bill prohibits a commercial DNA testing service from disclosing an individual's genetic information to China or any entity under the influence, control, or ownership of China.

The Federal Trade Commission is authorized to enforce this bill.

Current Status of Bill HR 5154

Bill HR 5154 is currently in the status of Bill Introduced since September 3, 2021. Bill HR 5154 was introduced during Congress 117 and was introduced to the House on September 3, 2021.  Bill HR 5154's most recent activity was Referred to the Subcommittee on Consumer Protection and Commerce. as of September 6, 2021

Bipartisan Support of Bill HR 5154

Total Number of Sponsors
1
Democrat Sponsors
0
Republican Sponsors
1
Unaffiliated Sponsors
0
Total Number of Cosponsors
0
Democrat Cosponsors
0
Republican Cosponsors
0
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HR 5154

Primary Policy Focus

Commerce

Potential Impact Areas

- Asia
- China
- Consumer affairs
- Genetics
- Health information and medical records
- Medical tests and diagnostic methods
- Right of privacy

Alternate Title(s) of Bill HR 5154

To prohibit commercial DNA testing services from disclosing the genetic information of United States nationals to foreign entities, and for other purposes.
American Genetic Privacy Act of 2021
American Genetic Privacy Act of 2021

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