Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021

Bill 117 HR 3679, also known as the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021, aims to support research efforts focused on Tourette Syndrome, a neurological disorder characterized by repetitive, involuntary movements and vocalizations known as tics.

The bill seeks to establish a collaborative research network that will bring together researchers, healthcare providers, and individuals with Tourette Syndrome to advance understanding of the disorder and develop more effective treatments. This network will be coordinated by the National Institutes of Health (NIH) and will prioritize research that addresses the needs of individuals with Tourette Syndrome and their families.

Additionally, the bill calls for the creation of a Tourette Syndrome Registry to collect data on individuals with the disorder, which will help researchers better understand the prevalence, course, and impact of Tourette Syndrome. This registry will also facilitate the recruitment of participants for clinical trials and other research studies. Overall, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021 aims to improve the lives of individuals with Tourette Syndrome by supporting research that will lead to better treatments and ultimately a cure for this complex neurological disorder.