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CCM–CARE Act of 2023

12/15/2023, 4:06 PM

Congressional Summary of S 543

Cerebral Cavernous Malformations Clinical Awareness, Research, and Education Act of 2023 or the CCM-CARE Act of 2023

This bill requires the National Institutes of Health (NIH) and other agencies to expand and coordinate their efforts to research cerebral cavernous malformation. (Cerebral cavernous malformation is a condition in which blood vessels in the brain and spinal cord become enlarged, which can lead to seizures, paralysis, hearing or vision loss, and bleeding in the brain.)

The NIH must (1) award grants for medical, clinical, and pharmacological research; (2) award grants to support a network of clinical research centers intended to develop a cure for the condition; and (3) convene a Cerebral Cavernous Malformations Research Consortium to develop programs for clinicians, scientists, and patients.

The Centers for Disease Control and Prevention must award grants to research entities for collecting and reporting data about cerebral cavernous malformation.

The Food and Drug Administration must accelerate the clinical trial process for cerebral cavernous malformation by supporting (1) appropriate laboratory indicators of the condition, (2) the qualification of clinical outcome measures related to quality of life, (3) investigational drug applications, and (4) expedited peer-review pathways.

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Current Status of Bill S 543

Bill S 543 is currently in the status of Bill Introduced since February 28, 2023. Bill S 543 was introduced during Congress 118 and was introduced to the Senate on February 28, 2023.  Bill S 543's most recent activity was Read twice and referred to the Committee on Health, Education, Labor, and Pensions. as of February 28, 2023

Bipartisan Support of Bill S 543

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
1
Democrat Cosponsors
1
Republican Cosponsors
0
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill S 543

Primary Policy Focus

Health

Potential Impact Areas

- Cardiovascular and respiratory health
- Drug safety, medical device, and laboratory regulation
- Drug therapy
- Health care quality
- Health facilities and institutions
- Health information and medical records
- Health promotion and preventive care
- Medical research
- Neurological disorders
- Research administration and funding

Alternate Title(s) of Bill S 543

CCM–CARE Act of 2023
CCM–CARE Act of 2023
Cerebral Cavernous Malformations Clinical Awareness, Research, and Education Act of 2023
A bill to increase research, education, and treatment for cerebral cavernous malformations.

Comments

Sponsors and Cosponsors of S 543

Ben Ray Lujan
Ben Ray Lujan
New MexicoDemocrat
Martin Heinrich
Martin Heinrich
New MexicoDemocrat

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