Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".

Hozzl · 2024-03-18T22:22:45Z

Explore the details of House Bill 1025 Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day". currently in Congress. Get insights into its purpose, current status, sponsors, and potential impact on Health. Stay informed on legislative developments.

3/18/2024, 10:22 PM

Summary of Bill HRES 1025

Bill 118 HRES 1025, also known as the "Barth Syndrome Awareness Day" bill, is a piece of legislation that aims to designate April 5, 2024, as a day to raise awareness about Barth Syndrome. Barth Syndrome is a rare genetic disorder that primarily affects males and is characterized by muscle weakness, heart problems, and low levels of certain types of white blood cells.

The bill expresses support for increasing awareness about Barth Syndrome and the challenges faced by individuals and families affected by this condition. By designating April 5th as "Barth Syndrome Awareness Day," the bill seeks to educate the public about the impact of this disorder and promote research efforts to find effective treatments and ultimately a cure.

The legislation is non-partisan and has garnered bipartisan support in Congress. It highlights the importance of raising awareness about rare diseases like Barth Syndrome and the need for continued support for individuals and families affected by these conditions. Overall, Bill 118 HRES 1025 is a significant step towards increasing awareness and understanding of Barth Syndrome, and it underscores the importance of supporting individuals with rare genetic disorders.

Congressional Summary of HRES 1025

This resolution supports the designation of Barth Syndrome Awareness Day. Barth Syndrome is a rare, life-threatening genetic disorder of lipid metabolism that primarily affects males.

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Current Status of Bill HRES 1025

Bill HRES 1025 is currently in the status of Bill Introduced since February 20, 2024. Bill HRES 1025 was introduced during Congress 118 and was introduced to the House on February 20, 2024. Bill HRES 1025's most recent activity was Referred to the House Committee on Energy and Commerce. as of February 20, 2024

Bipartisan Support of Bill HRES 1025

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Policy Area and Potential Impact of Bill HRES 1025

Primary Policy Focus

Health

Alternate Title(s) of Bill HRES 1025

Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".

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