Genetic Research Privacy Protection Act
1/11/2023, 1:31 PMCongressional Summary of S 2744
Genetic Research Privacy Protection Act
This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition.
Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects.
HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.Read the Full Bill
Current Status of Bill S 2744
Bill S 2744 is currently in the status of Bill Introduced since April 5, 2016. Bill S 2744 was introduced during Congress 114 and was introduced to the Senate on April 5, 2016. Bill S 2744's most recent activity was Read twice and referred to the Committee on Health, Education, Labor, and Pensions. as of April 5, 2016Bipartisan Support of Bill S 2744
Total Number of Sponsors
1Democrat Sponsors
1Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
1Democrat Cosponsors
0Republican Cosponsors
1Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill S 2744
Primary Policy Focus
HealthPotential Impact Areas
Civil actions and liabilityDrug, alcohol, tobacco useEvidence and witnessesFreedom of informationHealth information and medical recordsMedical researchMental healthResearch administration and fundingRight of privacyAlternate Title(s) of Bill S 2744
Genetic Research Privacy Protection ActA bill to amend the Public Health Service Act to protect the privacy of individuals who are research subjects, and for other purposes.Genetic Research Privacy Protection ActComments
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Sponsors and Cosponsors of S 2744
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