Bill 118 SRES 84, also known as a resolution designating February 28, 2023, as "Rare Disease Day," was introduced in the US Congress to bring awareness to the challenges faced by individuals living with rare diseases. The resolution aims to highlight the importance of research, treatment, and support for those affected by rare diseases.
Rare diseases are defined as conditions that affect a small percentage of the population, often with limited treatment options and resources. This resolution seeks to raise awareness about the impact of rare diseases on individuals and their families, as well as the need for continued research and funding to improve outcomes for those affected.
By designating February 28, 2023, as "Rare Disease Day," this resolution encourages individuals, healthcare providers, and policymakers to come together to support those living with rare diseases. It also serves as a reminder of the importance of advocating for increased resources and support for research and treatment of rare diseases.
Overall, Bill 118 SRES 84 aims to bring attention to the challenges faced by individuals living with rare diseases and to promote greater understanding and support for this often overlooked population.