ALS Better Care Act

The ALS Better Care Act, also known as Bill 118 hr 5663, is a piece of legislation currently being considered by the US Congress. The bill aims to improve care and support for individuals suffering from Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease.

The ALS Better Care Act proposes several key provisions to enhance the quality of life for ALS patients. One of the main components of the bill is to establish a national ALS registry to track the prevalence and incidence of the disease, as well as to improve research efforts and access to clinical trials.

Additionally, the bill seeks to improve coordination of care for ALS patients by establishing a national ALS care coordination network. This network would help connect patients with the resources and services they need, such as medical equipment, home health care, and palliative care. Furthermore, the ALS Better Care Act aims to enhance access to telehealth services for ALS patients, allowing them to receive care remotely and reducing the need for frequent in-person visits to healthcare providers. Overall, the ALS Better Care Act is designed to address the unique challenges faced by individuals living with ALS and improve their quality of life through better care coordination, research efforts, and access to essential services.