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Precision Medicine Answers for Kids Today Act

12/30/2022, 8:18 AM

Summary of Bill HR 5989

Bill 117 HR 5989, also known as the Precision Medicine Answers for Kids Today Act, is a piece of legislation introduced in the US Congress. The main goal of this bill is to improve the understanding and treatment of pediatric diseases through precision medicine.

Precision medicine is an approach to medical treatment that takes into account individual variability in genes, environment, and lifestyle for each person. This bill specifically focuses on applying precision medicine techniques to children, who often have unique medical needs that differ from adults.

The Precision Medicine Answers for Kids Today Act aims to establish a national pediatric research network that will collect and analyze data on pediatric diseases. This network will help researchers and healthcare providers better understand the underlying causes of childhood illnesses and develop more targeted and effective treatments. Additionally, the bill seeks to improve coordination and collaboration among various stakeholders in the field of pediatric precision medicine, including researchers, healthcare providers, and patient advocacy groups. By fostering partnerships and sharing data, the hope is to accelerate the development of new therapies and cures for pediatric diseases. Overall, the Precision Medicine Answers for Kids Today Act is a bipartisan effort to advance the field of pediatric precision medicine and improve outcomes for children with complex medical conditions. It represents a significant step towards personalized and effective healthcare for our nation's youngest patients.

Congressional Summary of HR 5989

Precision Medicine Answers for Kids Today Act

This bill establishes programs and requires reporting relating to Medicaid coverage of genetic and genomic testing, particularly for children.

Specifically, the bill establishes a demonstration program for up to 15 state Medicaid programs to cover genetic and genomic testing for certain individuals under the age of 21 (or a lower age, if the state chooses) and for former foster youth under the age of 26.

Additionally, the Centers for Medicare & Medicaid Services must report on overall Medicaid coverage of such services and issue guidance for states on ways to increase coverage for children; the National Academy of Medicine must study the impact of this guidance as well as the general utility of genetic and genomic testing.

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Current Status of Bill HR 5989

Bill HR 5989 is currently in the status of Bill Introduced since November 16, 2021. Bill HR 5989 was introduced during Congress 117 and was introduced to the House on November 16, 2021.  Bill HR 5989's most recent activity was Referred to the Subcommittee on Health. as of November 17, 2021

Bipartisan Support of Bill HR 5989

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
12
Democrat Cosponsors
10
Republican Cosponsors
2
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HR 5989

Primary Policy Focus

Health

Alternate Title(s) of Bill HR 5989

Precision Medicine Answers for Kids Today Act
Precision Medicine Answers for Kids Today Act
To require the Secretary of Health and Human Services to conduct a demonstration program to genetic and genomic testing for certain children, to provide for a study by the National Academy of Medicine on the use of such testing to improve health care, and for other purposes.

Comments

Sponsors and Cosponsors of HR 5989

Eric Swalwell
Eric Swalwell
CaliforniaDemocrat
Susan Wild
Susan Wild
PennsylvaniaDemocrat
Marc A. Veasey
Marc A. Veasey
TexasDemocrat
Scott H. Peters
Scott H. Peters
CaliforniaDemocrat
Gwen Moore
Gwen Moore
WisconsinDemocrat
Tom Emmer
Tom Emmer
MinnesotaRepublican

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