Expressing support for the designation of "Batten Disease Awareness Day" on June 9.

Hozzl · 2023-12-19T16:15:18Z

Explore the details of House Bill 485 Expressing support for the designation of "Batten Disease Awareness Day" on June 9. currently in Congress. Get insights into its purpose, current status, sponsors, and potential impact on Health. Stay informed on legislative developments.

12/19/2023, 4:15 PM

Summary of Bill HRES 485

Bill 118 HRES 485, also known as the "Batten Disease Awareness Day" bill, is a piece of legislation that expresses support for the designation of June 9 as Batten Disease Awareness Day. Batten Disease is a rare, fatal genetic disorder that primarily affects children, causing progressive neurological deterioration and eventually leading to death.

The bill aims to raise awareness about Batten Disease and the impact it has on individuals and families. By designating June 9 as Batten Disease Awareness Day, the bill seeks to educate the public about the disease, promote research efforts to find a cure, and provide support to those affected by Batten Disease.

The legislation is non-partisan and has garnered bipartisan support in Congress. It highlights the importance of raising awareness about rare diseases like Batten Disease and the need for continued research and support for individuals and families affected by these conditions. Overall, Bill 118 HRES 485 is a meaningful piece of legislation that aims to bring attention to Batten Disease and support those impacted by this devastating condition.

Congressional Summary of HRES 485

This resolution supports the designation of Batten Disease Awareness Day. (Batten Disease is a rare, inherited genetic disorder with no known cure that affects the nervous system.)

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Current Status of Bill HRES 485

Bill HRES 485 is currently in the status of Bill Introduced since June 9, 2023. Bill HRES 485 was introduced during Congress 118 and was introduced to the House on June 9, 2023. Bill HRES 485's most recent activity was Referred to the House Committee on Oversight and Accountability. as of June 9, 2023

Bipartisan Support of Bill HRES 485

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Policy Area and Potential Impact of Bill HRES 485

Primary Policy Focus

Health

Alternate Title(s) of Bill HRES 485

Expressing support for the designation of "Batten Disease Awareness Day" on June 9.Expressing support for the designation of "Batten Disease Awareness Day" on June 9.

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