Summary of Bill HRES 404
Bill 118 HRES 404, also known as the "Prader-Willi Syndrome Awareness Day" bill, aims to designate May 15, 2023, as a day to raise awareness of and promote research on Prader-Willi Syndrome. This rare genetic disorder affects approximately 1 in 15,000 people and is characterized by a range of physical, cognitive, and behavioral challenges.
The bill emphasizes the importance of increasing public understanding of Prader-Willi Syndrome and supporting efforts to find effective treatments and interventions for those living with the disorder. By designating May 15th as "Prader-Willi Syndrome Awareness Day," the hope is to bring attention to the needs of individuals with this condition and their families, as well as to encourage further research and advocacy efforts.
Overall, Bill 118 HRES 404 seeks to highlight the impact of Prader-Willi Syndrome on individuals and families, and to promote greater awareness and support for those affected by this complex disorder.