A resolution designating February 27, 2025, as "Rare Disease Day".

Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)

Bill 119 SRES 104, also known as the "Rare Disease Day" resolution, aims to designate February 27, 2025, as a day to raise awareness about rare diseases. The resolution highlights the challenges faced by individuals living with rare diseases and emphasizes the need for increased research, treatment options, and support for those affected.

Rare diseases are defined as conditions that affect a small percentage of the population, often with limited treatment options and resources available. This resolution seeks to bring attention to the struggles faced by individuals with rare diseases and their families, as well as the importance of continued efforts to improve their quality of life.

By designating February 27, 2025, as "Rare Disease Day," this resolution aims to promote education and awareness about rare diseases among the general public, healthcare professionals, and policymakers. It also encourages the development of innovative solutions and policies to address the unique needs of individuals with rare diseases. Overall, Bill 119 SRES 104 serves as a reminder of the importance of supporting individuals with rare diseases and working towards a future where all individuals have access to quality care and treatment options, regardless of the rarity of their condition.