Bill 119 hr 124 aims to make changes to title XIX of the Social Security Act in order to encourage education about the risk of renal medullary carcinoma in individuals with sickle cell disease who are receiving medical assistance. Renal medullary carcinoma is a rare and aggressive form of kidney cancer that primarily affects individuals with sickle cell disease.
The bill proposes providing incentives for healthcare providers to educate individuals with sickle cell disease about the risks of renal medullary carcinoma. This education would focus on early detection and prevention strategies to help reduce the incidence of this deadly cancer in this vulnerable population.
By increasing awareness and education about renal medullary carcinoma, the hope is to improve outcomes for individuals with sickle cell disease and reduce the burden of this rare cancer on the healthcare system. This bill represents a proactive approach to addressing a specific health concern within the sickle cell disease community.