Bill 118 SRES 636, also known as a resolution designating February 29, 2024, as "Rare Disease Day," is a piece of legislation introduced in the US Congress. The purpose of this resolution is to bring awareness to rare diseases and the challenges faced by those who are affected by them.
Rare diseases are defined as conditions that affect a small percentage of the population. Despite their rarity, these diseases can have a significant impact on the individuals who have them, as well as their families and caregivers. Rare Disease Day is an international observance held on the last day of February each year to raise awareness about rare diseases and the need for research and treatment options.
By designating February 29, 2024, as "Rare Disease Day," this resolution aims to highlight the importance of supporting individuals with rare diseases and advocating for increased research and resources to address these conditions. It also serves as a reminder of the need for continued efforts to improve the lives of those living with rare diseases.
Overall, Bill 118 SRES 636 is a bipartisan effort to recognize and bring attention to the challenges faced by individuals with rare diseases, and to promote greater understanding and support for those affected by these conditions.