Safeguarding American Genetic Data Act of 2023

3/12/2024, 7:45 PM
Read twice and referred to the Committee on Homeland Security and Governmental Affairs.
Bill 118 s 3411, also known as the Safeguarding American Genetic Data Act of 2023, is a piece of legislation currently being considered by the US Congress. The main purpose of this bill is to protect the genetic data of American citizens from unauthorized access and misuse.

The bill includes several key provisions aimed at achieving this goal. Firstly, it requires that any entity collecting or storing genetic data must obtain explicit consent from individuals before doing so. This is intended to ensure that individuals have control over who has access to their genetic information.

Additionally, the bill mandates that entities collecting genetic data must implement strong security measures to protect this data from cyber attacks and other forms of unauthorized access. This includes requirements for encryption, access controls, and regular security audits. Furthermore, the bill prohibits the sale or sharing of genetic data without the explicit consent of the individual to whom the data belongs. This is designed to prevent the unauthorized use of genetic information for purposes such as marketing or discrimination. Overall, the Safeguarding American Genetic Data Act of 2023 aims to establish clear guidelines for the collection, storage, and use of genetic data in order to protect the privacy and security of American citizens. It represents an important step towards ensuring that individuals have control over their own genetic information and are protected from potential misuse.
Congress
118

Number
S - 3411

Introduced on
2023-12-05

# Amendments
0

Sponsors
+5

Variations and Revisions

12/5/2023

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

Read twice and referred to the Committee on Homeland Security and Governmental Affairs.
Bill 118 s 3411, also known as the Safeguarding American Genetic Data Act of 2023, is a piece of legislation currently being considered by the US Congress. The main purpose of this bill is to protect the genetic data of American citizens from unauthorized access and misuse.

The bill includes several key provisions aimed at achieving this goal. Firstly, it requires that any entity collecting or storing genetic data must obtain explicit consent from individuals before doing so. This is intended to ensure that individuals have control over who has access to their genetic information.

Additionally, the bill mandates that entities collecting genetic data must implement strong security measures to protect this data from cyber attacks and other forms of unauthorized access. This includes requirements for encryption, access controls, and regular security audits. Furthermore, the bill prohibits the sale or sharing of genetic data without the explicit consent of the individual to whom the data belongs. This is designed to prevent the unauthorized use of genetic information for purposes such as marketing or discrimination. Overall, the Safeguarding American Genetic Data Act of 2023 aims to establish clear guidelines for the collection, storage, and use of genetic data in order to protect the privacy and security of American citizens. It represents an important step towards ensuring that individuals have control over their own genetic information and are protected from potential misuse.
Alternative Names
Official Title as IntroducedA bill to prohibit contracting with certain biotechnology providers.

Policy Areas
Government Operations and Politics

Comments

Recent Activity

Latest Action12/5/2023
Read twice and referred to the Committee on Homeland Security and Governmental Affairs.