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Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.

2/5/2024, 2:30 PM

Summary of Bill HRES 514

Bill 118 HRES 514, also known as the "World Sickle Cell Awareness Day" bill, aims to designate June 19, 2023, as a day to raise awareness about sickle cell disease. The bill emphasizes the importance of increasing public awareness about the disease, the need for ongoing research, early detection screenings for carriers of the sickle cell trait, effective treatments leading to a cure, and preventative care programs for complications related to sickle cell anemia.

The bill highlights the significance of educating both the United States and the global community about sickle cell disease, which predominantly affects individuals of African, Hispanic, Mediterranean, and Middle Eastern descent. By designating June 19th as "World Sickle Cell Awareness Day," the bill aims to bring attention to the challenges faced by those living with sickle cell disease and to promote efforts to improve their quality of life.

Furthermore, the bill emphasizes the importance of continued research into sickle cell disease in order to develop novel and effective treatments that may ultimately lead to a cure. It also stresses the need for early detection screenings for carriers of the sickle cell trait, as early intervention can help prevent complications associated with the disease. Overall, Bill 118 HRES 514 seeks to raise awareness about sickle cell disease, promote research efforts, and advocate for improved care and support for individuals living with the condition. By designating June 19th as "World Sickle Cell Awareness Day," the bill aims to mobilize communities and organizations to work together towards improving the lives of those affected by sickle cell disease.

Congressional Summary of HRES 514

This resolution supports the goals and ideals of World Sickle Cell Awareness Day. Sickle cell disease is an inherited blood disorder than can lead to pain, anemia, infections, and stroke.

Current Status of Bill HRES 514

Bill HRES 514 is currently in the status of Bill Introduced since June 15, 2023. Bill HRES 514 was introduced during Congress 118 and was introduced to the House on June 15, 2023.  Bill HRES 514's most recent activity was Referred to the Subcommittee on Health. as of June 16, 2023

Bipartisan Support of Bill HRES 514

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
8
Democrat Cosponsors
4
Republican Cosponsors
4
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HRES 514

Primary Policy Focus

Health

Potential Impact Areas

- Blood and blood diseases
- Cell biology and embryology
- Child health
- Commemorative events and holidays
- Digestive and metabolic diseases
- Genetics
- Health care coverage and access
- Health promotion and preventive care
- Hereditary and development disorders
- Home and outpatient care
- Intergovernmental relations
- Medicaid
- Medical research
- Medicare
- Minority health
- Presidents and presidential powers, Vice Presidents
- State and local government operations
- World health

Alternate Title(s) of Bill HRES 514

Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.
Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.

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