Bill 118 HRES 514, also known as the "World Sickle Cell Awareness Day" bill, aims to designate June 19, 2023, as a day to raise awareness about sickle cell disease. The bill emphasizes the importance of increasing public awareness about the disease, the need for ongoing research, early detection screenings for carriers of the sickle cell trait, effective treatments leading to a cure, and preventative care programs for complications related to sickle cell anemia.
The bill highlights the significance of educating both the United States and the global community about sickle cell disease, which predominantly affects individuals of African, Hispanic, Mediterranean, and Middle Eastern descent. By designating June 19th as "World Sickle Cell Awareness Day," the bill aims to bring attention to the challenges faced by those living with sickle cell disease and to promote efforts to improve their quality of life.
Furthermore, the bill emphasizes the importance of continued research into sickle cell disease in order to develop novel and effective treatments that may ultimately lead to a cure. It also stresses the need for early detection screenings for carriers of the sickle cell trait, as early intervention can help prevent complications associated with the disease.
Overall, Bill 118 HRES 514 seeks to raise awareness about sickle cell disease, promote research efforts, and advocate for improved care and support for individuals living with the condition. By designating June 19th as "World Sickle Cell Awareness Day," the bill aims to mobilize communities and organizations to work together towards improving the lives of those affected by sickle cell disease.