Bill 118 HRES 1550, also known as the "AADC Deficiency Awareness Day" bill, aims to designate October 23, 2024, as a day to raise awareness about Aromatic L-amino acid decarboxylase (AADC) deficiency. This rare genetic disorder affects the nervous system and can lead to developmental delays, movement disorders, and other serious health issues.
The bill highlights the importance of educating the public about AADC deficiency, as well as supporting research efforts to find effective treatments and ultimately a cure for this condition. By designating a specific day for awareness, advocates hope to bring attention to the challenges faced by individuals and families affected by AADC deficiency, and to promote greater understanding and support within the community.
If passed, this legislation would encourage government agencies, healthcare providers, and advocacy organizations to collaborate on initiatives to raise awareness about AADC deficiency and provide resources for those impacted by the disorder. Overall, the bill seeks to improve the quality of life for individuals living with AADC deficiency and to advance research efforts towards finding better treatments and ultimately a cure.