Bill 118 HRES 1304, also known as the "World Sickle Cell Awareness Day" bill, aims to designate June 19, 2024, as a day to increase public awareness about sickle cell disease. The bill emphasizes the importance of empirical research, early detection screenings, novel treatments, and preventative care programs for individuals with sickle cell anemia and related conditions.
The goal of the bill is to raise awareness about the challenges faced by individuals living with sickle cell disease and to highlight the need for continued research and advancements in treatment options. By designating June 19th as "World Sickle Cell Awareness Day," the bill seeks to bring attention to the impact of this disease on individuals and families, as well as the importance of early detection and effective care.
Overall, Bill 118 HRES 1304 aims to promote education and understanding about sickle cell disease, with the ultimate goal of improving outcomes for those affected by this condition. The bill emphasizes the importance of ongoing efforts to find a cure for sickle cell anemia and to provide support for individuals living with this disease.