DeOndra Dixon INCLUDE Project Act of 2024

10/4/2024, 7:57 PM

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.)

Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome. 

 

 

Congress
118

Number
HR - 7406

Introduced on
2024-02-16

# Amendments
0

Sponsors
+5

Cosponsors
+5

Variations and Revisions

9/18/2024

Status of Legislation

Bill Introduced
Introduced to House
Passed in House
Introduced to Senate
Senate to Vote

Purpose and Summary

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.)

Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome. 

 

 

Alternative Names
Official Title as IntroducedTo amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.

Policy Areas
Health

Potential Impact
Congressional oversight
Genetics
Health programs administration and funding
Hereditary and development disorders
Medical research
Research administration and funding

Comments

Recent Activity

Latest Summary9/12/2024

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born wi...


Latest Action9/18/2024
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.