Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
3/19/2025, 8:05 AMSummary of Bill HRES 209
Bill 119 HRES 209, also known as the "Barth Syndrome Awareness Day" bill, is a piece of legislation that aims to designate April 5, 2025, as a day to raise awareness about Barth Syndrome. Barth Syndrome is a rare genetic disorder that primarily affects males and is characterized by muscle weakness, heart problems, and low levels of certain types of fats in the blood.The bill expresses support for the designation of April 5, 2025, as Barth Syndrome Awareness Day in order to educate the public about this little-known condition and to encourage research and funding for treatments and cures. The goal of the bill is to bring attention to the challenges faced by individuals and families affected by Barth Syndrome and to promote greater understanding and support for those living with the disorder.
By designating April 5, 2025, as Barth Syndrome Awareness Day, the bill aims to raise awareness, promote research, and ultimately improve the lives of those affected by this rare genetic disorder. It is a bipartisan effort to support individuals and families impacted by Barth Syndrome and to advocate for greater resources and support for research and treatment.
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Current Status of Bill HRES 209
Bill HRES 209 is currently in the status of Bill Introduced since March 10, 2025. Bill HRES 209 was introduced during Congress 119 and was introduced to the House on March 10, 2025. Bill HRES 209's most recent activity was Referred to the House Committee on Energy and Commerce. as of March 10, 2025Bipartisan Support of Bill HRES 209
Total Number of Sponsors
3Democrat Sponsors
3Republican Sponsors
0Unaffiliated Sponsors
0Total Number of Cosponsors
15Democrat Cosponsors
8Republican Cosponsors
7Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill HRES 209
Primary Policy Focus
HealthAlternate Title(s) of Bill HRES 209
Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".Comments
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