Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

2/5/2024, 2:30 PM

Summary of Bill HRES 419

Bill 118 HRES 419, also known as the Ehlers-Danlos Syndrome Awareness Month Resolution, is a piece of legislation that aims to raise awareness about Ehlers-Danlos Syndrome (EDS) by designating the month of May as EDS Awareness Month. EDS is a genetic disorder that affects the body's connective tissues, leading to symptoms such as joint hypermobility, skin fragility, and chronic pain.

The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.

Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.

Congressional Summary of HRES 419

This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.

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Current Status of Bill HRES 419

Bill HRES 419 is currently in the status of Bill Introduced since May 17, 2023. Bill HRES 419 was introduced during Congress 118 and was introduced to the House on May 17, 2023. Bill HRES 419's most recent activity was Referred to the Subcommittee on Health. as of May 19, 2023

Bipartisan Support of Bill HRES 419

Total Number of Sponsors

Democrat Sponsors

Republican Sponsors

Unaffiliated Sponsors

Total Number of Cosponsors

Democrat Cosponsors

Republican Cosponsors

Unaffiliated Cosponsors

Policy Area and Potential Impact of Bill HRES 419

Primary Policy Focus

Health

Potential Impact Areas

Commemorative events and holidaysCongressional tributesHealth promotion and preventive careHereditary and development disordersMedical research

Alternate Title(s) of Bill HRES 419

Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

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Sponsors and Cosponsors of HRES 419

C. A. Dutch Ruppersberger

Maryland(Democrat)

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