Expressing support for the designation of June 20, 2024, as "World FSHD Day".

Hozzl · 2024-07-10T15:59:30Z

Explore the details of House Bill 1307 Expressing support for the designation of June 20, 2024, as "World FSHD Day". currently in Congress. Get insights into its purpose, current status, sponsors, and potential impact on Health. Stay informed on legislative developments.

7/10/2024, 3:59 PM

Summary of Bill HRES 1307

Bill 118 HRES 1307, also known as the "World FSHD Day" bill, is a piece of legislation that expresses support for the designation of June 20, 2024, as "World FSHD Day." FSHD, or Facioscapulohumeral Muscular Dystrophy, is a rare genetic muscle disorder that affects an estimated 1 in 8,333 individuals worldwide.

The bill recognizes the importance of raising awareness about FSHD and the impact it has on individuals and families. By designating June 20, 2024, as "World FSHD Day," the bill aims to bring attention to the challenges faced by those living with FSHD and to promote research and advancements in treatment options.

The legislation is non-partisan and seeks to unite members of Congress in support of individuals affected by FSHD. By officially recognizing "World FSHD Day," the bill highlights the need for continued efforts to improve the lives of those living with this rare genetic disorder. Overall, Bill 118 HRES 1307 is a positive step towards raising awareness and support for individuals affected by FSHD, and emphasizes the importance of continued research and advocacy in the fight against rare genetic disorders.

Congressional Summary of HRES 1307

This resolution expresses support for the designation of World Facioscapulohumeral Muscular Dystrophy (FSHD) Day.

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Current Status of Bill HRES 1307

Bill HRES 1307 is currently in the status of Bill Introduced since June 18, 2024. Bill HRES 1307 was introduced during Congress 118 and was introduced to the House on June 18, 2024. Bill HRES 1307's most recent activity was Referred to the House Committee on Energy and Commerce. as of June 18, 2024

Bipartisan Support of Bill HRES 1307

Total Number of Sponsors

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Unaffiliated Sponsors

Total Number of Cosponsors

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Unaffiliated Cosponsors

Policy Area and Potential Impact of Bill HRES 1307

Primary Policy Focus

Health

Alternate Title(s) of Bill HRES 1307

Expressing support for the designation of June 20, 2024, as "World FSHD Day".Expressing support for the designation of June 20, 2024, as "World FSHD Day".

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