Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021

12/30/2022, 8:01 PM

Summary of Bill HR 3679

Bill 117 HR 3679, also known as the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021, aims to support research efforts focused on Tourette Syndrome, a neurological disorder characterized by repetitive, involuntary movements and vocalizations known as tics.

The bill seeks to establish a collaborative research network that will bring together researchers, healthcare providers, and individuals with Tourette Syndrome to advance understanding of the disorder and develop more effective treatments. This network will be coordinated by the National Institutes of Health (NIH) and will prioritize research that addresses the needs of individuals with Tourette Syndrome and their families.

Additionally, the bill calls for the creation of a Tourette Syndrome Registry to collect data on individuals with the disorder, which will help researchers better understand the prevalence, course, and impact of Tourette Syndrome. This registry will also facilitate the recruitment of participants for clinical trials and other research studies. Overall, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021 aims to improve the lives of individuals with Tourette Syndrome by supporting research that will lead to better treatments and ultimately a cure for this complex neurological disorder.

Congressional Summary of HR 3679

Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021

This bill requires the National Institutes of Health (NIH) to carry out data collection and expand other research activities on Tourette syndrome. This is a neurological disorder characterized by sudden, repetitive, rapid, and unwanted movements or vocal sounds.

Specifically, the NIH must develop a system to collect epidemiological data and information on the availability of medical and social services for individuals with Tourette syndrome and their families.

In addition, the NIH must award various grants for research on Tourette syndrome, including to support Collaborative Research Centers for Tourette Syndrome.

The NIH must also designate a portion of its funding for Tourette syndrome programs and activities.

Current Status of Bill HR 3679

Bill HR 3679 is currently in the status of Bill Introduced since June 1, 2021. Bill HR 3679 was introduced during Congress 117 and was introduced to the House on June 1, 2021.  Bill HR 3679's most recent activity was Referred to the Subcommittee on Health. as of June 2, 2021

Bipartisan Support of Bill HR 3679

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
4
Democrat Cosponsors
2
Republican Cosponsors
2
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill HR 3679

Primary Policy Focus

Health

Potential Impact Areas

Government information and archivesHealth information and medical recordsHealth programs administration and fundingMedical researchNeurological disordersResearch administration and funding

Alternate Title(s) of Bill HR 3679

To amend the Public Health Service Act to provide for the expansion, intensification, and coordination of the programs and activities of the National Institutes of Health with respect to Tourette syndrome.Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021Collaborative Academic Research Efforts for Tourette Syndrome Act of 2021
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