Bill 117 S.Res.74, also known as the "Rare Disease Day" resolution, was introduced in the United States Senate to designate February 28, 2021, as Rare Disease Day. The purpose of this resolution is to raise awareness about rare diseases and the challenges faced by individuals living with these conditions.
Rare diseases are defined as conditions that affect a small percentage of the population. Despite their rarity, these diseases collectively impact millions of Americans and their families. Rare Disease Day serves as an opportunity to highlight the need for increased research, funding, and support for those living with rare diseases.
The resolution emphasizes the importance of early diagnosis, access to treatment, and support services for individuals with rare diseases. It also recognizes the contributions of patients, caregivers, healthcare providers, and researchers in the rare disease community.
By designating February 28, 2021, as Rare Disease Day, the Senate aims to bring attention to the unique challenges faced by individuals with rare diseases and to promote greater understanding and support for this often overlooked population.