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Sickle Cell Disease Comprehensive Care Act

3/11/2024, 5:43 PM

Congressional Summary of S 996

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.

The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.

The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.

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Current Status of Bill S 996

Bill S 996 is currently in the status of Bill Introduced since March 28, 2023. Bill S 996 was introduced during Congress 118 and was introduced to the Senate on March 28, 2023.  Bill S 996's most recent activity was Read twice and referred to the Committee on Finance. as of March 28, 2023

Bipartisan Support of Bill S 996

Total Number of Sponsors
1
Democrat Sponsors
1
Republican Sponsors
0
Unaffiliated Sponsors
0
Total Number of Cosponsors
3
Democrat Cosponsors
1
Republican Cosponsors
2
Unaffiliated Cosponsors
0

Policy Area and Potential Impact of Bill S 996

Primary Policy Focus

Health

Alternate Title(s) of Bill S 996

Sickle Cell Disease Comprehensive Care Act
Sickle Cell Disease Comprehensive Care Act
A bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.

Comments

Sponsors and Cosponsors of S 996

Cory A. Booker
Cory A. Booker
New JerseyDemocrat
Tim Scott
Tim Scott
South CarolinaRepublican
Debbie Stabenow
Debbie Stabenow
MichiganDemocrat
Bill Cassidy
Bill Cassidy
LouisianaRepublican

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