Sickle Cell Disease Comprehensive Care Act

12/15/2023, 4:06 PM

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.

The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.

The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.

Congress
118

Number
S - 904

Introduced on
2023-03-21

# Amendments
0

Sponsors
+5

Variations and Revisions

3/21/2023

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.

The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.

The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.

Alternative Names
Official Title as IntroducedA bill to amend title XIX of the Social Security Act to establish a demonstration project to improve outpatient clinical care for individuals with sickle cell disease.

Policy Areas
Health

Potential Impact
Blood and blood diseases
Congressional oversight
Government information and archives
Health care coverage and access
Health information and medical records
Health programs administration and funding
Health promotion and preventive care
Health technology, devices, supplies
Hereditary and development disorders
Home and outpatient care
Intergovernmental relations
Medicaid
Minority health

Comments

Recent Activity

Latest Summary4/19/2023

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young a...


Latest Action3/21/2023
Read twice and referred to the Committee on Finance.