A bill to provide consumers with the right to delete their genomic data, and for other purposes.

12/6/2024, 11:56 AM
Read twice and referred to the Committee on Commerce, Science, and Transportation.
Bill 118 s 5433, also known as the Genomic Data Privacy Act, aims to give consumers the right to delete their genomic data. This bill is designed to protect the privacy and security of individuals' genetic information.

The bill would require companies that collect and store genomic data to allow consumers to request the deletion of their data. This would give individuals more control over who has access to their genetic information and how it is used.

In addition to the right to delete genomic data, the bill also includes provisions for ensuring the security of this data. Companies would be required to implement measures to protect genomic data from unauthorized access and to notify consumers in the event of a data breach. Overall, the Genomic Data Privacy Act seeks to empower consumers to have more control over their genetic information and to ensure that this data is handled responsibly and securely by companies.
Congress
118

Number
S - 5433

Introduced on
2024-12-05

# Amendments
0

Sponsors
+5

Cosponsors
+5

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

Read twice and referred to the Committee on Commerce, Science, and Transportation.
Bill 118 s 5433, also known as the Genomic Data Privacy Act, aims to give consumers the right to delete their genomic data. This bill is designed to protect the privacy and security of individuals' genetic information.

The bill would require companies that collect and store genomic data to allow consumers to request the deletion of their data. This would give individuals more control over who has access to their genetic information and how it is used.

In addition to the right to delete genomic data, the bill also includes provisions for ensuring the security of this data. Companies would be required to implement measures to protect genomic data from unauthorized access and to notify consumers in the event of a data breach. Overall, the Genomic Data Privacy Act seeks to empower consumers to have more control over their genetic information and to ensure that this data is handled responsibly and securely by companies.
Alternative Names
Official Title as IntroducedA bill to provide consumers with the right to delete their genomic data, and for other purposes.

Comments

APPROVED
AK
Alexandra Kay
@tandoori_masala_mitsuba_scapa85640
I think this bill is good because it lets people delete their DNA stuff if they want. I like that. It's important for people to have control over their own information. This bill could help protect people's privacy in the long run.

APPROVED
LK
Leland Kidd
@roti_bunnahabhain_clontarf78242
I don't get why they wanna make us delete our DNA stuff. Like, why can't we keep it if we want to? This bill sounds like it's gonna mess with my rights. How is this gonna change things for all of us?

Recent Activity

Latest Action12/5/2024
Read twice and referred to the Committee on Commerce, Science, and Transportation.