ORPHAN Cures Act

12/15/2023, 4:09 PM
Read twice and referred to the Committee on Finance.
Bill 118 s 3131, also known as the ORPHAN Cures Act, is a piece of legislation currently being considered by the US Congress. The main goal of this bill is to provide support and resources for the development of treatments and cures for rare diseases, also known as orphan diseases.

The ORPHAN Cures Act aims to address the challenges faced by patients with rare diseases, who often struggle to find effective treatments due to the limited research and development in this area. The bill proposes to increase funding for research on rare diseases, as well as provide incentives for pharmaceutical companies to develop treatments for these conditions.

Additionally, the ORPHAN Cures Act includes provisions to improve access to orphan drugs for patients, streamline the approval process for these treatments, and enhance collaboration between researchers, healthcare providers, and patient advocacy groups. Overall, the ORPHAN Cures Act seeks to accelerate the development of treatments and cures for rare diseases, ultimately improving the quality of life for patients affected by these conditions. It is currently under review in Congress, and its passage could have a significant impact on the rare disease community in the United States.
Congress
118

Number
S - 3131

Introduced on
2023-10-25

# Amendments
0

Sponsors
+5

Cosponsors
+5

Variations and Revisions

10/25/2023

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

Read twice and referred to the Committee on Finance.
Bill 118 s 3131, also known as the ORPHAN Cures Act, is a piece of legislation currently being considered by the US Congress. The main goal of this bill is to provide support and resources for the development of treatments and cures for rare diseases, also known as orphan diseases.

The ORPHAN Cures Act aims to address the challenges faced by patients with rare diseases, who often struggle to find effective treatments due to the limited research and development in this area. The bill proposes to increase funding for research on rare diseases, as well as provide incentives for pharmaceutical companies to develop treatments for these conditions.

Additionally, the ORPHAN Cures Act includes provisions to improve access to orphan drugs for patients, streamline the approval process for these treatments, and enhance collaboration between researchers, healthcare providers, and patient advocacy groups. Overall, the ORPHAN Cures Act seeks to accelerate the development of treatments and cures for rare diseases, ultimately improving the quality of life for patients affected by these conditions. It is currently under review in Congress, and its passage could have a significant impact on the rare disease community in the United States.
Alternative Names
Official Title as IntroducedA bill to amend title XI of the Social Security Act to expand and clarify the exclusion for orphan drugs under the Drug Price Negotiation Program.

Policy Areas
Health

Comments

Recent Activity

Latest Action10/25/2023
Read twice and referred to the Committee on Finance.