Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

2/5/2024, 2:30 PM

This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.

Bill 118 HRES 419, also known as the Ehlers-Danlos Syndrome Awareness Month Resolution, is a piece of legislation that aims to raise awareness about Ehlers-Danlos Syndrome (EDS) by designating the month of May as EDS Awareness Month. EDS is a genetic disorder that affects the body's connective tissues, leading to symptoms such as joint hypermobility, skin fragility, and chronic pain.

The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.

Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
Congress
118

Number
HRES - 419

Introduced on
2023-05-17

# Amendments
0

Sponsors
+5

Variations and Revisions

5/17/2023

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.

Bill 118 HRES 419, also known as the Ehlers-Danlos Syndrome Awareness Month Resolution, is a piece of legislation that aims to raise awareness about Ehlers-Danlos Syndrome (EDS) by designating the month of May as EDS Awareness Month. EDS is a genetic disorder that affects the body's connective tissues, leading to symptoms such as joint hypermobility, skin fragility, and chronic pain.

The resolution highlights the importance of increasing knowledge about EDS, as it is a little-known and potentially fatal disease. By designating May as EDS Awareness Month, the hope is to educate the public about the impact of EDS on individuals and families, as well as to promote research and support for those affected by the disorder.

Overall, Bill 118 HRES 419 seeks to bring attention to EDS and the challenges faced by those living with the condition. It emphasizes the need for increased awareness, research, and support for individuals with EDS, in order to improve their quality of life and ultimately find a cure for this genetic disease.
Alternative Names
Official Title as IntroducedExpressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.

Policy Areas
Health

Potential Impact
Commemorative events and holidays
Congressional tributes
Health promotion and preventive care
Hereditary and development disorders
Medical research

Comments

Recent Activity

Latest Summary12/18/2023

This resolution supports the designation of Ehlers-Danlos Syndrome Awareness Month. This syndrome is a group of inherited disorders that affect collagen in skin, joints, and other connective tissue.


Latest Action5/19/2023
Referred to the Subcommittee on Health.