Genetic Sequencing Accountability Act

3/8/2023, 7:58 PM

Genetic Sequencing Accountability Act

This bill requires the Government Accountability Office to report on national security and related risks of human genomic sequencing services or genetic services that are funded by the Department of Health and Human Services and carried out by certain foreign entities. In particular, the report must focus on entities that receive such funding and are organized under the laws of a country or countries of concern, as determined by the Office of the Director of National Intelligence or other federal departments.

Bill 117 HR 6363, also known as the Genetic Sequencing Accountability Act, is a piece of legislation currently being considered by the US Congress. The purpose of this bill is to establish guidelines and regulations for the use of genetic sequencing technology in various industries, including healthcare, research, and consumer services.

The bill aims to address concerns surrounding the privacy and security of genetic information, as well as the potential misuse of this data. It requires companies and organizations that offer genetic sequencing services to adhere to strict data protection measures, including obtaining informed consent from individuals before collecting and analyzing their genetic data.

Additionally, the Genetic Sequencing Accountability Act mandates that companies must provide clear and transparent information to consumers about how their genetic information will be used, stored, and shared. This includes informing individuals about any potential risks or limitations associated with genetic testing, as well as ensuring that their data is kept confidential and secure. Furthermore, the bill establishes penalties for companies that violate these regulations, including fines and potential legal action. It also calls for the creation of a regulatory body to oversee compliance with the provisions outlined in the legislation. Overall, the Genetic Sequencing Accountability Act seeks to promote responsible and ethical use of genetic sequencing technology, while also protecting the privacy and rights of individuals who choose to undergo genetic testing. It represents an important step towards ensuring that genetic information is handled in a secure and accountable manner across various industries.
Congress
117

Number
HR - 6363

Introduced on
2022-01-10

# Amendments
0

Sponsors
+5

Variations and Revisions

1/10/2022

Status of Legislation

Bill Introduced
Introduced to House
House to Vote
Introduced to Senate
Senate to Vote

Purpose and Summary

Genetic Sequencing Accountability Act

This bill requires the Government Accountability Office to report on national security and related risks of human genomic sequencing services or genetic services that are funded by the Department of Health and Human Services and carried out by certain foreign entities. In particular, the report must focus on entities that receive such funding and are organized under the laws of a country or countries of concern, as determined by the Office of the Director of National Intelligence or other federal departments.

Bill 117 HR 6363, also known as the Genetic Sequencing Accountability Act, is a piece of legislation currently being considered by the US Congress. The purpose of this bill is to establish guidelines and regulations for the use of genetic sequencing technology in various industries, including healthcare, research, and consumer services.

The bill aims to address concerns surrounding the privacy and security of genetic information, as well as the potential misuse of this data. It requires companies and organizations that offer genetic sequencing services to adhere to strict data protection measures, including obtaining informed consent from individuals before collecting and analyzing their genetic data.

Additionally, the Genetic Sequencing Accountability Act mandates that companies must provide clear and transparent information to consumers about how their genetic information will be used, stored, and shared. This includes informing individuals about any potential risks or limitations associated with genetic testing, as well as ensuring that their data is kept confidential and secure. Furthermore, the bill establishes penalties for companies that violate these regulations, including fines and potential legal action. It also calls for the creation of a regulatory body to oversee compliance with the provisions outlined in the legislation. Overall, the Genetic Sequencing Accountability Act seeks to promote responsible and ethical use of genetic sequencing technology, while also protecting the privacy and rights of individuals who choose to undergo genetic testing. It represents an important step towards ensuring that genetic information is handled in a secure and accountable manner across various industries.
Alternative Names
Official Title as IntroducedTo direct the Comptroller General of the United States to conduct a study on funding to entities utilizing such funding for human genomic sequencing or genetic services.

Policy Areas
Health

Comments

Recent Activity

Latest Summary3/30/2022

Genetic Sequencing Accountability Act

This bill requires the Government Accountability Office to report on national security and related risks of human genomic sequencing services or genetic services that are funded by the...


Latest Action1/11/2022
Referred to the Subcommittee on Health.